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Friday, January 13, 2006

"Immunology Support" My Ass

Okay, so I joined this immunology support group that I found mention of on Fertile Thoughts. I read their files, perused their databases and, okay, I'm really impressed. They've done their homework on the subject of reproductive immunology to the point that they actually direct much of their own care through argument and persuasion.

So I crafted an initial, "Hey I'm new and infertile, too!" email...posted my NK assay scores, which APAs I test positive for, etcetera and I waited. And I waited. And then I waited some more. And I continued to read their posts chock full of "baby dust" and "warm wishes". Now I know what one of the crones meant by "choking on baby dust". I must concede that all this "baby dust" shit IS pretty infantile when you think about it.

But to continue, no one wrote back to me even if to say, "Hey Linda, welcome to the group!" Not a single person. So in my waiting, I pinged a few gals offline and struck up conversations with two of them. Real decent gals - but I wonder if they would have spoken to me at all if I hadn't pinged them offline? Hmmm.... I even posted replies to a few posts by some women, but they went unheeded. And late last night I posted an email with an "Yo Jane!" sort of email header hoping to hear from the reproductive immunology guru herself. But nothing. What the fuck?

So now I am left wondering why the heck these women bother to call themselves an "immunology SUPPORT" group? I just don't understand what it takes to break the ice with these women. It baffles me. But no matter. I'll keep reading their files, postings, etcetera. They obviously don't welcome outsiders and I sure as hell can't count on any support from them.

So much for the SUPPORT part of "Immunology Support."

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Blogger tonya said ... (6:45 PM) : 

It does suck, Linda. I had the exact same first experience there. I have a theory about it that I'd be happy to discuss via email, but not comfortable posting publicly. Meantime, I'll go look for your post.

 

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Ultrasound of a 9 week old fetus

Diagnosis:
elevated NKs, NKUs, 3 +APAs (2 borderline), heterozygous for MTHFR A1298C. Slightly low thyroid.

dq-α:
me: 1.1, 4.1
dh: 1.2, 3.1

Low LADs were treated in Mexico and elsewhere with LIT.
Anti-sperm antibodies
Article: LIT and the FDA

No: ANAs, normal TH1/TH2 Cytokine ratio, or x-DNA/Histones.

IF Treatments:
-Clomid #1: Sept 2005
-Clomid #2: Sept 2005
-HSG: Oct 2005
-Lap/Chromo: Oct 2005
-Nat'l IUI: Nov 2005
-IVF #1: Jan 2006, β1=2.0, β2=0.9
-IVF #2: May 2006, β1=<1.0
-Myomectomy (5), salpingectomy (both), & endo removed via lap on 6.6.6
-LIT#1 in Nogales: 6.16.6
-LIT#2: July 2006
-FET #1: Sept 2006, β1=2.48, β2=<2.0
-Dr. Hungarian Dx Oct 2006
-Dr. Hungarian Tx Dec 2006-Mar 2007
-IVF#3: Mar 2007 Canceled myself right before retrieval
-IVF#4: April/May 2007 Canceled due to dominant follicle
-IVF#4: August 2007, β1<2.0
-IVF#5: December 2007

Pre-ET
Feng Shui'd the House
500mg Zithromax starting with stims
4 LIT Treatments
17 Weeks of Humira or Enbrel
30g IVIg CD5 of IVF cycle (day 2 or 3 of stims)
30g IVIg 2 days before transfer
1mg Dexamethazone starting with stims
30mg Lovenox, 2X's/Day
0.0375mg Synthroid
Lexapro
Prenatal
Folguard 2.2 2x's/day
Extra 1g C (Stop at ET)
Extra 1g Calcium
Extra 400mg E (Stop at ET)
Nettle Tea & Capsules
2g Bromelain
Extra D3
Keep BMI<24
4-6g Fish Oil/Day
Baby Aspirin
Eating Loads of Protein!
Nettle Caplets
Femoral Massage (Stop at ET)
Acupuncture (Stop at ET)
TCM Diet: No cold or slippery foods
Immune Friendly Diet: No non-sprouted wheat, sugar, starches. Little fruit.
No nightshades
No caffeine
No coffee, not even decaf
No soy when in cycle
10 days Doxycycline

Day of Transfer
Light activity

Post ET Changes
Visualization
200mg progesterone capsules
Take it easy days 2&3
No sex til beta#1
Cut out egg yolks (contains immunogenic acid)






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