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Tuesday, January 03, 2006

Let's Usher in the New Year with some Good Ol' MTHFR

Comcast was down for 4 days prior so today is a day of extreme catching up. Over 250 emails came pouring into my outlook inbox and it took the better part of the day to sort it all out. Oh how I would love a big juicy red to sink my teeth into right about now. But no....we're being "good". For as long as possible.

So my last test results FINALLY came in today. Health Line did the venipuncture for my MTHFR test on 12/16/5...after having botched the first test on 12/6/5 when they didn't draw enough blood and then to top it off, their main lab didn't bother to tell anyone about it. So a week went by and no test showed up. Lucky for me I've got the investigatory gene and the gripe gene and I figured out that something was amiss.

So they agreed to "comp" this test...thank GOD. It would have been something like $650 and I can see Health Net having a major cow over this one. So after about a week of trying to wrangle the test results out of them.

HN: "Oh we faxed you the lab results..."

Me: "But you didn't put any both tests on the page and there's no data for the one that you did send."

HN: "But it's right there where it says Test: MTHFR C677T/1298C Genotypr"

Me: "No that is not the result. That is Specialty Labs telling you what test they are running."

HN: "So you are the patient?"

Me: "Yes."

HN: "Well we can't fax you the test results."

Me: "Then what am I looking at?"

As you can see, we didn't get very far. But they did agree to fax the results to Dr. Z's office (I should have told them my fax number just so I could get a copy of my own test results!). Dr. Z's office emailed about 4pm today to let me know they'd finally arrived. I do test positive for a mutated version of the A1298C allele, but it's not a nasty assed version, or even the dreaded double helping. But it does mean that I'll have to supplement with Folgard...no Lovenox for me. No sirree!!

Oh, also accomplished ordering most of my drugs today, with the exception of the Bravelle and progesterone in oil that will be coming by way of the International Pharmacy in Middlesex, U.K. I wasn't sure if I sure if I should use www.IVFMeds.com or the International Pharmacy, but Modern Millie seemed to have researched the latter to the point that I am going to trust her judgement on this one as she IS the WOman when it comes to this sort of thing.

I will be so relieved when all of my drugs are ordered and in my hands so it will be one less thing to worry about....besides the fact that Kaiser screwed up J's sperm cultures...ggggrr.....

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Ultrasound of a 9 week old fetus

Diagnosis:
elevated NKs, NKUs, 3 +APAs (2 borderline), heterozygous for MTHFR A1298C. Slightly low thyroid.

dq-α:
me: 1.1, 4.1
dh: 1.2, 3.1

Low LADs were treated in Mexico and elsewhere with LIT.
Anti-sperm antibodies
Article: LIT and the FDA

No: ANAs, normal TH1/TH2 Cytokine ratio, or x-DNA/Histones.

IF Treatments:
-Clomid #1: Sept 2005
-Clomid #2: Sept 2005
-HSG: Oct 2005
-Lap/Chromo: Oct 2005
-Nat'l IUI: Nov 2005
-IVF #1: Jan 2006, β1=2.0, β2=0.9
-IVF #2: May 2006, β1=<1.0
-Myomectomy (5), salpingectomy (both), & endo removed via lap on 6.6.6
-LIT#1 in Nogales: 6.16.6
-LIT#2: July 2006
-FET #1: Sept 2006, β1=2.48, β2=<2.0
-Dr. Hungarian Dx Oct 2006
-Dr. Hungarian Tx Dec 2006-Mar 2007
-IVF#3: Mar 2007 Canceled myself right before retrieval
-IVF#4: April/May 2007 Canceled due to dominant follicle
-IVF#4: August 2007, β1<2.0
-IVF#5: December 2007

Pre-ET
Feng Shui'd the House
500mg Zithromax starting with stims
4 LIT Treatments
17 Weeks of Humira or Enbrel
30g IVIg CD5 of IVF cycle (day 2 or 3 of stims)
30g IVIg 2 days before transfer
1mg Dexamethazone starting with stims
30mg Lovenox, 2X's/Day
0.0375mg Synthroid
Lexapro
Prenatal
Folguard 2.2 2x's/day
Extra 1g C (Stop at ET)
Extra 1g Calcium
Extra 400mg E (Stop at ET)
Nettle Tea & Capsules
2g Bromelain
Extra D3
Keep BMI<24
4-6g Fish Oil/Day
Baby Aspirin
Eating Loads of Protein!
Nettle Caplets
Femoral Massage (Stop at ET)
Acupuncture (Stop at ET)
TCM Diet: No cold or slippery foods
Immune Friendly Diet: No non-sprouted wheat, sugar, starches. Little fruit.
No nightshades
No caffeine
No coffee, not even decaf
No soy when in cycle
10 days Doxycycline

Day of Transfer
Light activity

Post ET Changes
Visualization
200mg progesterone capsules
Take it easy days 2&3
No sex til beta#1
Cut out egg yolks (contains immunogenic acid)






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