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Wednesday, August 23, 2006

CD19: Test Results Back

Test results are in! My NK's are lower than they've ever been (8.7), my cytokines are low, too, and my LADs came back PERFECT:

T Cells at 99.7
B Cells at 99.3

As DB's nurse said, "They can't get any better than this!" So we've got the green light to proceed with next month's FET!

We are so excited as we were fearful we might have to make a third trip to Nogales for LIT treatment. We did have one thing that did come back bad: my endometrial biopsy. They found 9 cells of NKUs in my "screen" and anything at or above 4 is considered "abnormal". My friend LL, also a DB patient, had 20, or was it 30, in her endo biopsy and she was on humira for 3 months before she was given the green light to proceed. I've been on Humira for 1 month, and will have been on it for 2 months when we do our FET. So hopefully I'll have enough of it in my system when the FET occurs. If I get a BFP I'll be on it for another month or two and I'll also make another trip to Nogales at this point for a booster shot.

But it does look, so far, like I'll be able to get by with out the $2015-per-dose IVIg infusion. Of course, Dr. S might change his mind and tell me to do one anyways, but we probably won't know for sure until we're closer to that date. But gosh it's coming up FAST. Today's CD19 and AF is due in a little more than a week. Once AF comes, I'll be starting on my dexamethasone (CD6), continuing on with prenatals, folguard, lovenox, lexapro, and synthroid. I have a little sushi dish next to the refrigerator where I put the day's supplements, vitamins, and medication. It's quite a fright to see so many pills in there each and every day. But it's all for the good of the embies.

Now I just stress that we get at least one good embie when they've thawed. After all the immune work we just did, I think that if this doesn't work the only thing we can do is to go RIGHT into a IVF cycle after this. The LIT will only work for 6 to 12 months, and the effects of the humira only last 2 weeks. I hate to waste all this good work we've done, and being that I turn 42 this year, I really feel that I have to press on and try again. Sigh.

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Blogger tonya said ... (11:58 PM) : 

YAY Linda!! So glad to see your results came back and NO sign of a flare. [whew!] I am so hopeful for you... and am sending successful thawing vibes. :-D

 

Blogger Pamplemousse said ... (3:53 AM) : 

Let's get it on!!!!

I used to have a pillbox but it is too small now.

 

Blogger Thalia said ... (9:26 AM) : 

Sounds like you have some great figures there. I so hope that it does the trick!

 

Anonymous statia said ... (5:57 PM) : 

Woo. So glad you're getting the green light. For some reason, I thought you had gone through with the FET before all of this.

I've resorted to becoming stupid since getting knocked up.

 

Blogger Millie said ... (6:46 AM) : 

So glad those trips to Mexico did the job. Best of luck with the FET. I feel your pain with all the pills.

 

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Ultrasound of a 9 week old fetus

Diagnosis:
elevated NKs, NKUs, 3 +APAs (2 borderline), heterozygous for MTHFR A1298C. Slightly low thyroid.

dq-α:
me: 1.1, 4.1
dh: 1.2, 3.1

Low LADs were treated in Mexico and elsewhere with LIT.
Anti-sperm antibodies
Article: LIT and the FDA

No: ANAs, normal TH1/TH2 Cytokine ratio, or x-DNA/Histones.

IF Treatments:
-Clomid #1: Sept 2005
-Clomid #2: Sept 2005
-HSG: Oct 2005
-Lap/Chromo: Oct 2005
-Nat'l IUI: Nov 2005
-IVF #1: Jan 2006, β1=2.0, β2=0.9
-IVF #2: May 2006, β1=<1.0
-Myomectomy (5), salpingectomy (both), & endo removed via lap on 6.6.6
-LIT#1 in Nogales: 6.16.6
-LIT#2: July 2006
-FET #1: Sept 2006, β1=2.48, β2=<2.0
-Dr. Hungarian Dx Oct 2006
-Dr. Hungarian Tx Dec 2006-Mar 2007
-IVF#3: Mar 2007 Canceled myself right before retrieval
-IVF#4: April/May 2007 Canceled due to dominant follicle
-IVF#4: August 2007, β1<2.0
-IVF#5: December 2007

Pre-ET
Feng Shui'd the House
500mg Zithromax starting with stims
4 LIT Treatments
17 Weeks of Humira or Enbrel
30g IVIg CD5 of IVF cycle (day 2 or 3 of stims)
30g IVIg 2 days before transfer
1mg Dexamethazone starting with stims
30mg Lovenox, 2X's/Day
0.0375mg Synthroid
Lexapro
Prenatal
Folguard 2.2 2x's/day
Extra 1g C (Stop at ET)
Extra 1g Calcium
Extra 400mg E (Stop at ET)
Nettle Tea & Capsules
2g Bromelain
Extra D3
Keep BMI<24
4-6g Fish Oil/Day
Baby Aspirin
Eating Loads of Protein!
Nettle Caplets
Femoral Massage (Stop at ET)
Acupuncture (Stop at ET)
TCM Diet: No cold or slippery foods
Immune Friendly Diet: No non-sprouted wheat, sugar, starches. Little fruit.
No nightshades
No caffeine
No coffee, not even decaf
No soy when in cycle
10 days Doxycycline

Day of Transfer
Light activity

Post ET Changes
Visualization
200mg progesterone capsules
Take it easy days 2&3
No sex til beta#1
Cut out egg yolks (contains immunogenic acid)






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