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Thursday, September 07, 2006

CD7: Self Medicating

There's a lot of talk these days on the immunology board about infections and infertility. Dr. Toth's work in this area is amazing to say the least. Dr. Moustache likes to seem as though he's doing everything on the planet, and that he is immune friendly as well, but he falls short when it comes to "certain tests" such as serotonin, cytokines, thyroid function, LADs, etc. He also doesn't act with much proactiveness with respect to potential infections.

Dr. Moustache's office tested us both for mycoplasma and ureaplasma last December. We both tested negative, but these two microbes often evade detection by standard lab tests. Even the CDC says that current testing is "lacking". We took our doxycycline at that first cycle but that was about it. I recently found a couple of leftover scipts for doxy and went and filled them. I think I have a 15 day supply at this point.

I phoned the office at Dr. Moustache's yesterday and said that I realize they think I don't need to take doxy, but that I'd like to do a course of antibiotics anyways. They phoned back and said I could start them right before transfer. Dr. Toth's research shows that he often has patients do 3 weeks of doxy (100mg, twice a day) as part of a general course of action. So rather than wait to start my doxy, I think that I'll start today, 100mg, twice a day for 10 days. That will put me at CD17, which should be damned close to transfer. I can continue on with Dr. Moustache's doxy protocol at this time and continue on for another couple days.

This seems like the safest option to make sure that an infection is kept at bay. I realize that Dr. Toth uses many other antibiotics like Augmentin, but this is what I have got to work with for now.

I feel a bit nervous self-medicating, but a lot of us infertiles wind up doing this because we don't have as much confidence in our REs as we did in the beginning. Or, we do research on our own and find that there are methods or treatments that our REs are ignoring for one reason or another. I am pessimistic. I think many REs, maybe mine, are partly in this for the $$ and that when we fail an IVF cycle, we then become potential "repeat customers". The REs that say that they don't care about their stats and will treat anyone scare me the most. IMHO, they're more likely to fall victim to the "repeat customer" scenario.

Scarily, that's my RE. He'll treat anyone. He doesn't even bother to test for CD3 FSH. Even DB believed in that and so do many REs. And I think that is why I am self medicating. He's a great RE when it comes down to it, but I worry that because he doesn't have to give a hoot about his stats that he might not pull out all the stops for me.

It is irrational that I continue to see, but I do so because his stats are good despite his not caring about them.

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Comments on "CD7: Self Medicating"

 

Anonymous statia said ... (2:40 PM) : 

See, I think his stats have started declining. I think he's gotten in way over his head and while he's "immunology friendly" I think it's partially at a price (kickbacks). I had no problem walking out that door and never looking back. I think even if it had worked with him, I don't know that my mind about him would have changed.

I know you're doing everything you can immunology wise and I totally respect that. You're doing this because you feel it's best. But I have to wonder if you were to do this FET without the assitance of meds, if it would make a difference. I'm only speaking from my point of view because I didn't do any of those things. (of course, I still worry, but I feel like I'm beating odds). And according to Moustache, I ran the gamut of immunology issues.

 

Blogger Millie said ... (8:18 PM) : 

My name is millie and I'm a self-medicator. I get the wanting the perfect protocol. I nearly went to NYC just to get the antibiotics because what if I were among the small percentage that needed them? I think there's more of looking for a magic potion in a protocol than most of us want to admit. So we try dhea or antibiotics or dexamethasone or all of the above. And if it works we credit that because it's easier to think it's something than it's just luck.

So I wish you the best cycle. I think you're doing so many good things. And I'm sending you lots of luck and good wishes just to cover those bases as well.

 

Blogger Donna said ... (8:43 PM) : 

You are not a statistic, and I for one can't think of anything you could be doing better or different. I really hope the odds are in your favor this time, you so deserve this!

 

Blogger Thalia said ... (8:09 AM) : 

You know where i stand on the immunology stuff, but I support you in your quest for the right cycle for you. One thing though,I think they all care about their stats. They may treat everyone etc., but its publicly available information about high performing people, of course they care. So I don't really believe that they'll just treat everyone no matter what.

 

Blogger tonya said ... (10:34 PM) : 

You know my experience and all I can say is I got Tiny Boy after the full immune treatment (and also a round of antibiotics for an infection during the cycle we hit the jackpot). Rooting for you over here and hoping everything works out just right to bring you a baby!

 

Blogger Pamplemousse said ... (2:57 AM) : 

I just started the self-medication part of my upcoming cycle by adding in the antibiotics that a fellow blogger donated to me! Anything is worth a try.

 

Anonymous Jennie said ... (9:27 PM) : 

ahem I too am a self medicator, only I lie to do it *mwhahaha* need antibiotics? too easy just do as I did visit your local GP say you have a tooth abscess and the dentist suggested a dose before treatment i even suggest which antibiotic would be best. ta da. even works for additional doses. as a patient whose clinic does not "do" immune testing i've learnt to become creative. we do what we need to do so don't sweat it besides you'll be bug free in no time *s*

 

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Ultrasound of a 9 week old fetus

Diagnosis:
elevated NKs, NKUs, 3 +APAs (2 borderline), heterozygous for MTHFR A1298C. Slightly low thyroid.

dq-α:
me: 1.1, 4.1
dh: 1.2, 3.1

Low LADs were treated in Mexico and elsewhere with LIT.
Anti-sperm antibodies
Article: LIT and the FDA

No: ANAs, normal TH1/TH2 Cytokine ratio, or x-DNA/Histones.

IF Treatments:
-Clomid #1: Sept 2005
-Clomid #2: Sept 2005
-HSG: Oct 2005
-Lap/Chromo: Oct 2005
-Nat'l IUI: Nov 2005
-IVF #1: Jan 2006, β1=2.0, β2=0.9
-IVF #2: May 2006, β1=<1.0
-Myomectomy (5), salpingectomy (both), & endo removed via lap on 6.6.6
-LIT#1 in Nogales: 6.16.6
-LIT#2: July 2006
-FET #1: Sept 2006, β1=2.48, β2=<2.0
-Dr. Hungarian Dx Oct 2006
-Dr. Hungarian Tx Dec 2006-Mar 2007
-IVF#3: Mar 2007 Canceled myself right before retrieval
-IVF#4: April/May 2007 Canceled due to dominant follicle
-IVF#4: August 2007, β1<2.0
-IVF#5: December 2007

Pre-ET
Feng Shui'd the House
500mg Zithromax starting with stims
4 LIT Treatments
17 Weeks of Humira or Enbrel
30g IVIg CD5 of IVF cycle (day 2 or 3 of stims)
30g IVIg 2 days before transfer
1mg Dexamethazone starting with stims
30mg Lovenox, 2X's/Day
0.0375mg Synthroid
Lexapro
Prenatal
Folguard 2.2 2x's/day
Extra 1g C (Stop at ET)
Extra 1g Calcium
Extra 400mg E (Stop at ET)
Nettle Tea & Capsules
2g Bromelain
Extra D3
Keep BMI<24
4-6g Fish Oil/Day
Baby Aspirin
Eating Loads of Protein!
Nettle Caplets
Femoral Massage (Stop at ET)
Acupuncture (Stop at ET)
TCM Diet: No cold or slippery foods
Immune Friendly Diet: No non-sprouted wheat, sugar, starches. Little fruit.
No nightshades
No caffeine
No coffee, not even decaf
No soy when in cycle
10 days Doxycycline

Day of Transfer
Light activity

Post ET Changes
Visualization
200mg progesterone capsules
Take it easy days 2&3
No sex til beta#1
Cut out egg yolks (contains immunogenic acid)






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