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Monday, October 02, 2006

CD32: Doing Crazy Shit While I Wait For AF

I was riding the couch with J tonight, watching something mindless on Channel 11 and they break to what's on tomorrow night...and it's none other than Dr. Moustache on a show about people having babies via IVF. Bleh. We can't escape him even in the privacy of our own living room. It was deja vu of a whole new variety. HIS voice in OUR living room. What could be more creepy? Thank god Statia wasn't here. She hates him more than I do and might have thrown something at our new TV.

What else?

I stopped taking my lexapro. Cold turkey. I may regret this any moment now, and I almost did this morning as my heart was beating so hard I thought that it was "it", but after that I have mostly felt headachey and a bit bitchy. My old self returning or what? :-) Now if my libido would just return! But I can tell that I'm having side effects from this choice of mine to quite cold turkey. It's 2:30AM and I'm up buying shit on ebay and feeling not quite right. Bit of pressure in m head and my jaws feel tense. When I was taking lexapro I could barely stay awake past 11PM. My old self is definitely on the horizon, and she's not too far away. I can almost see her.

So maybe you recall my crazy posts where I was going to do my own LIT treatments and skip ever having to go to Mexico and pay Dr. Q $600 for a LIT treament ever again? Well given that LIT is the ONLY thing that reduces my NK cells, and I have a while until my next IVF, I did it: I started to buy the lab equipment that I'll need to get this done.

Tonight, on ebay, I bought:

50 Sterile 21g BD Butterfly Syringes with 3/4" needles and leur locks
100 Sterile Pasteur Pipettes

I've already got insulin syringes for delivery and a latex tourniquet.

And I've got my eye on a really sweet centrifuge with swing out rotors...all digital controls, temperature control, variable speeds, and a timer. I will be stylin' with this thing.

What else do I need?

  • Gloves (costco)
  • One Use Holders. You attach butterfly syringe to this so that you can slip the vacutainer tube onto the needle end. (ebay)
  • Sterile 15ml Centrifuge Tubes with Caps (ebay or old lab where I worked)
  • Sterile PBS Buffer for washing step (where to get? making sterile solutions is a PAIN without a lab!!)
  • Sterile Hartmans's or Ringer's solution for resuspending & injection (A pain. Where to get?)
  • BD Cell Separation Tubes. These are so cool. One step separations! BD says you can't use these for in vivo applications, but I'd be washing the separations 2 or 3 times, pelleting, and resuspending before injecting. They'd be darned clean by the time I'm done with them.

I think that is actually about it and I hope to have everything at least ordered by the end of this week so that I can get started.

I'm THIS CLOSE to being able to do my own LITs. Amazing! I know it's crazy shit to be doing this. You don't have to tell me this. But I've done a lot of research on this procedure and I really think it can be safely done without a physician's supervision. The big deal here is using sterile technique, which I have done in my job in the lab time and time again. Keeping sterile and being meticulous about isolating that buffy coat and not letting it get contaminated with RBCs are the important issues here. Last thing we want is any of J's type B+ blood mixing with my A+. Imagine the hoopla that would ensue in the ER room as I tried to explain myself. It would be even more entertaining than last month's trip to the ER when I thought I'd aspirated a garbanzo bean into my lungs.

So I'm going to do it. It's scary to experiment on oneself, but I'll hit up RI's office tomorrow and see if they won't share any of the procedure with me. I know it's illegal to actually DO the procedure to someone since the FDA ban, but to share information about an "outdated procedure" doesn't really fall under any regulation.

I'll definitely photodocument the entire procedure when I finally get around to doing this. Hopefully soon!

Stay tuned for more crazy shit as my lexapro wears off. :o)

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Blogger Thalia said ... (12:51 PM) : 

Linda this is really crazy, please think about this. You don't have a sterile room in your house, so the chance of infecting the solution while you are making it is VERY HIGH. It's not just technique, it's environment.

And while I'm on this, please please think again re the NK thing. Have your NKs ever been measured in your peritoneum? Because peripheral blood concentration has NOTHING TO DO WITH the concentration where it counts (even if there was a proven mechanism of action for them). You are potentially going to INFECT YOUR BLOOD for a treatment which has never been shown to have any benefit. Please, please think very carefully about this.

 

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Ultrasound of a 9 week old fetus

Diagnosis:
elevated NKs, NKUs, 3 +APAs (2 borderline), heterozygous for MTHFR A1298C. Slightly low thyroid.

dq-α:
me: 1.1, 4.1
dh: 1.2, 3.1

Low LADs were treated in Mexico and elsewhere with LIT.
Anti-sperm antibodies
Article: LIT and the FDA

No: ANAs, normal TH1/TH2 Cytokine ratio, or x-DNA/Histones.

IF Treatments:
-Clomid #1: Sept 2005
-Clomid #2: Sept 2005
-HSG: Oct 2005
-Lap/Chromo: Oct 2005
-Nat'l IUI: Nov 2005
-IVF #1: Jan 2006, β1=2.0, β2=0.9
-IVF #2: May 2006, β1=<1.0
-Myomectomy (5), salpingectomy (both), & endo removed via lap on 6.6.6
-LIT#1 in Nogales: 6.16.6
-LIT#2: July 2006
-FET #1: Sept 2006, β1=2.48, β2=<2.0
-Dr. Hungarian Dx Oct 2006
-Dr. Hungarian Tx Dec 2006-Mar 2007
-IVF#3: Mar 2007 Canceled myself right before retrieval
-IVF#4: April/May 2007 Canceled due to dominant follicle
-IVF#4: August 2007, β1<2.0
-IVF#5: December 2007

Pre-ET
Feng Shui'd the House
500mg Zithromax starting with stims
4 LIT Treatments
17 Weeks of Humira or Enbrel
30g IVIg CD5 of IVF cycle (day 2 or 3 of stims)
30g IVIg 2 days before transfer
1mg Dexamethazone starting with stims
30mg Lovenox, 2X's/Day
0.0375mg Synthroid
Lexapro
Prenatal
Folguard 2.2 2x's/day
Extra 1g C (Stop at ET)
Extra 1g Calcium
Extra 400mg E (Stop at ET)
Nettle Tea & Capsules
2g Bromelain
Extra D3
Keep BMI<24
4-6g Fish Oil/Day
Baby Aspirin
Eating Loads of Protein!
Nettle Caplets
Femoral Massage (Stop at ET)
Acupuncture (Stop at ET)
TCM Diet: No cold or slippery foods
Immune Friendly Diet: No non-sprouted wheat, sugar, starches. Little fruit.
No nightshades
No caffeine
No coffee, not even decaf
No soy when in cycle
10 days Doxycycline

Day of Transfer
Light activity

Post ET Changes
Visualization
200mg progesterone capsules
Take it easy days 2&3
No sex til beta#1
Cut out egg yolks (contains immunogenic acid)






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