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Friday, August 24, 2007

Aftermath

We had our "sorry your cycle failed" consult with Dr. Generous today. She was fantastic as usual. She said with such sincereness, "I am so sorry that you're not pregnant". It resonated in me that she truly meant this, it wasn't just words for her. I wonder, sometimes, if some of these female RE's have gone thru infertility themselves? Of course some of them have. I just wonder if any of the docs that I've met have. Dr. Generous has the compassion of a woman that has experienced this firsthand. I wonder...?

So, yes, I brought up my concerns about being overmedicated with lupron, undermedicated with progesterone, and she was fully on-board with trying my suggestions in the next cycle. In my core I feared that she'd fire us as Dr. Moustache had done, especially after I offered up my own SWAG (scientific wild ass guess) as to what we could do. But, no, she was happy to adjust my lupron down and switch me from the progesterone capsules to PIO in ethyl oleate.

She also asked how long we planned on trying before making other plans. It was a painfully honest question. How much more CAN we do this? The answer is: I'm really not sure. Our decision, now, is largely based on finances, so it'll depend on where things lay in three month's time. We are being placed on the embryo donation list. She said that "L" would call me to talk about what sort of races were acceptable to us. It felt so odd. My initial feeling was, "Gosh, someone is kind enough to offer me their embryos. How could race even be a factor?!" I'm pretty much color blind when it comes to this. Of course if we find the are literally swimming with a multitude of embryos, a veritable candy store of them, then sure, I'll be happy to be choosy. But gosh, I would just be so grateful to be the recipient of such a generous gift. Like I'm going to turn down an embryo because it doesn't look like me? Like us? Not a chance. Okay, that was one heck of a digression into embryo donation...back to the next cycle.

For now the plan is to finish this AF, and the next. The next will be the first "real bleed". After this, we wait one more AF, then for my LH surge. 11 days after the surge we'll add in antagon to stop my FSH levels dead in their tracks so that they won't induce a dominant follicle from starting. No BCPs or estrace for me. It simply doesn't work. When AF starts, once again, we'll start stims as we did in this cycle.

So we're about three months out from starting our next cycle and the timing feels right to me. 3 months is plenty of time for the enbrel to work it's magic but, you know, I might just stretch it to 4 months as I think that's what Dr. B might have suggested.

On the emotional side of things, I feel a bit deadened...like the only thing that is keeping me from really being sad about this failed cycle is that there is still hope that the next one might work. My manager asked me the other day, "When do you know it's time to quit? To give up?" I don't know how to answer that. I think IVF is like childbirth. In childbirth you have oxytocin and all those hormones that help you forget how f*cking painful childbirth was. What do we have in IVF to help us forget? There's nothing really, except the hope of the next cycle being "it", the cycle that works.

Isn't it amazing that hope can deaden so much of our pain?

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Anonymous MLO said ... (6:03 AM) : 

You are amazing and deserve a BFP. Here's hoping that the next cycle will bring success.

Pax,

MLO

 

Blogger millie said ... (11:16 AM) : 

I have a friend with adorable twin boys from ED at your clinic. I know you're not there yet but I think it's good to be working on the next plan.

 

Blogger tonya said ... (1:10 PM) : 

This post really resonated with me. It IS amazing what we put ourselves through to achieve the dream. What Dr. G asked you is something my hubby asked me time and again... how much will be too much? How many losses can you (we) handle before we say ENOUGH? It is such a hard road, and the journey obviously is worth it when it works out the way we hope. But along the way... it IS nothing short of miraculous how we keep motivating ourselves to keep one foot following the other most days.

I'm glad you have a plan, and a plan B, in the works. Sending you love.

 

Blogger Knock Me Up said ... (10:05 AM) : 

I am in agreement with Tonya -- it is amazing how we can all keep going through this in order to reach our dream. In our house it is I who would give up sooner than SB but I think that is just b/c it is harder on me both physically and emotionally. I know he is sad when it doesn't work but he really thinks we'll "just" try again.
I really like how your dr. interacted with you. What a nice thing to have her listen and take your suggestions to mean something. And I liked her asking you the question. It is a hard question to be asked but at some point (that is the sticky part) it does need to be out there.

3 months gives you time to go back to your good eating habits that you mentioned in a previous posts. Hopefully, that will make a difference for you.

 

Blogger Rachel said ... (6:13 AM) : 

I really admire your tenacity. I'm not sure I could take it. I'm sorry about the negative, and good luck trying again.

 

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Ultrasound of a 9 week old fetus

Diagnosis:
elevated NKs, NKUs, 3 +APAs (2 borderline), heterozygous for MTHFR A1298C. Slightly low thyroid.

dq-α:
me: 1.1, 4.1
dh: 1.2, 3.1

Low LADs were treated in Mexico and elsewhere with LIT.
Anti-sperm antibodies
Article: LIT and the FDA

No: ANAs, normal TH1/TH2 Cytokine ratio, or x-DNA/Histones.

IF Treatments:
-Clomid #1: Sept 2005
-Clomid #2: Sept 2005
-HSG: Oct 2005
-Lap/Chromo: Oct 2005
-Nat'l IUI: Nov 2005
-IVF #1: Jan 2006, β1=2.0, β2=0.9
-IVF #2: May 2006, β1=<1.0
-Myomectomy (5), salpingectomy (both), & endo removed via lap on 6.6.6
-LIT#1 in Nogales: 6.16.6
-LIT#2: July 2006
-FET #1: Sept 2006, β1=2.48, β2=<2.0
-Dr. Hungarian Dx Oct 2006
-Dr. Hungarian Tx Dec 2006-Mar 2007
-IVF#3: Mar 2007 Canceled myself right before retrieval
-IVF#4: April/May 2007 Canceled due to dominant follicle
-IVF#4: August 2007, β1<2.0
-IVF#5: December 2007

Pre-ET
Feng Shui'd the House
500mg Zithromax starting with stims
4 LIT Treatments
17 Weeks of Humira or Enbrel
30g IVIg CD5 of IVF cycle (day 2 or 3 of stims)
30g IVIg 2 days before transfer
1mg Dexamethazone starting with stims
30mg Lovenox, 2X's/Day
0.0375mg Synthroid
Lexapro
Prenatal
Folguard 2.2 2x's/day
Extra 1g C (Stop at ET)
Extra 1g Calcium
Extra 400mg E (Stop at ET)
Nettle Tea & Capsules
2g Bromelain
Extra D3
Keep BMI<24
4-6g Fish Oil/Day
Baby Aspirin
Eating Loads of Protein!
Nettle Caplets
Femoral Massage (Stop at ET)
Acupuncture (Stop at ET)
TCM Diet: No cold or slippery foods
Immune Friendly Diet: No non-sprouted wheat, sugar, starches. Little fruit.
No nightshades
No caffeine
No coffee, not even decaf
No soy when in cycle
10 days Doxycycline

Day of Transfer
Light activity

Post ET Changes
Visualization
200mg progesterone capsules
Take it easy days 2&3
No sex til beta#1
Cut out egg yolks (contains immunogenic acid)






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