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Who are the lucky bloggers this month?

Working on it:
Mad Hatter

On other paths:
Fertile Soul
Pamplemousse
Out, damned egg! Out I say!
Holding Pattern
Hummingbird Chronicles
LAF
Try Whistling This
TTC Journey
Torrefaction
Velvet Cage

Success:
Adventures in Baby Making
Not According to Plan
Barren Albion
Barren Mare
Bindweed Heights
Dead Bug
Due Dates
Fertility Shmertility
Fisher Queen
Flotsam
Fumbling Towards Eggstacy
Great Good Fortune
Healing Arts
Hopeful Mother
IF & the City
The Infertility Times
It Only Takes One Egg
Manana Banana
Me the Bumblebee
(Non)Conception Confessions
Ornery Lotus Blossom
Waiting for Baby Orange
Barefoot and...
It's So Not About You
...and Black Coffee Blues
Jenny From the Infertility Block
Prop Your Hips
Smarshy Boy
Stella and/or Ben
Thin Pink Line
Tinkering with the Works
TKO, More or Less
Twisted Ovaries
UtRus
When Eggs Go Bad...

Other Good Reads:
Dr. Licciardi's Infertility Blog

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Mc Gill Reproductive Centre - Montreal
Georgia Reproductive Specialists
Jinemed Hospital - Turkey

Cooper Center - NJ
Conceptions - Colorado
Red Rock Fertility - Dr. Eva Littman
Pacific Fertility Center
Zouves Fertility Center"
Nova IVF
SIRM

IVF Meds - UK
Free Garage Sale
Flying Pharmacy (IVIg)

Tuesday, November 10, 2009

What was he thinking?

This is one of those posts that I'm going to be a bit cryptic in.

So I am on this IF forum...which is ran by a rather famous clinic, that has offices in maybe 7 major areas in the US. Each clinic has its own forum which is moderated by a RE that works in that office.

One of the doctors, at one of these clinics, often pushes his book at the infertility patients on this forum. So I ordered it today, because he said it would tell me what sorts of vitamins I should be eating as an infertility patient. Well, today it finally arrived. Imagine my shock and unhappiness as I opened the book only to see page after page of recommendations for women who are already pregnant. No, seriously, the ENTIRE BOOK is for pregnant women, not IF patients. Nothing for us at all. My heart sunk. What was he thinking?

Mind you, most of these patients are infertility patients who have gone through a great deal of heartache, loss, failures, you name it. You don't dare mention you are pregnant without a caveat in your post title.

I felt that this doctor was rather insensitive to push this book at patients who are in the throes of attempting pregnancy. The title:P*rf*ct H@rm@ne B@l@nc# f0r Pr@gn@ncy made me think that it was for women who are TRYING to get pregnant. NOT for those that are already pregnant.

And actually, the reason I wanted this book is that as an immune patient I have a need for extra vitamins, specifically calcium, vitamin D, fish oils, etc. I was hoping to get updated insights on how much I should be taking to get maximum benefits. Unfortunately, he wrote a single PARAGRAPH on immune issues and all he spoke of were -Rh issues. OMFG. Rh issues are genetically passed...immune issues can be but often are not. I felt that the subject of Rh issues shouldn't even be here but in another category entirely. What can I say?

I went and visited the forum today and tried very politely to let the doctor know that I was a bit upset over the type of book that wound up arriving today. I asked him to please warn patients of the subject matter of the book.

Come on, would you tell an infertility patient who has experienced recurrent failure or loss to go out and buy "What to expect when you're expecting"? You wouldn't. It would be considered callous and insensitive.

I know I'm being a bit sensitive about this, but I felt that he was so very wrong to have pushed such a book on the forum without warning.

I know just what to do though. When I go to see my IF doctor, this week or next, I'll offer to donate it to the office's waiting room. If they say it wouldn't be appropriate (and we know it's not) I'll let them know that the doctor that wrote it, who works in a sister clinic, is promoting it on his clinic's forum (which is so closely tied to the other clinics that it's hard to separate them out). Maybe that is the easiest way to let them know of its inappropriateness without beating them over the head with it. Seriously, I won't be reading it. There's nothing in it for me. Not a blessed thing.

What do you think about this? Any thoughts?

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Anonymous musicmakermomma said ... (12:10 PM) : 

What a big jerk to promote his book at any cost - no thought about the effect it might have! I hope you tell him plainly that was just not kind.

Also, very interested in your low iron issues, I too have often been slightly anemic, but I don't know what my actual levels are. Will check this out before my HOPEFULLY January cycle. Thanks!

 

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elevated NKs
NKUs
3 +APAs (2 borderline)
heterozygous MTHFR A1298C
Slightly low thyroid.

dq-α:
me: 1.1, 4.1
dh: 1.2, 3.1 we parted

Low LADs were treated in Mexico and elsewhere with LIT
Anti-sperm antibodies
Article: LIT and the FDA

No: ANAs, normal TH1/TH2 Cytokine ratio, or x-DNA/Histones.

SMA Carrier

IF Treatments:
-Clomid #1: Sep 2005
-Clomid #2: Sep 2005
-HSG (tubes barely open): Oct 2005
-Lap/Chromo (cyst removed; tubes clogged): Oct 2005
-Nat'l IUI: Nov 2005
-IVF #1: Jan 2006, β1=2.0, β2=0.9
-IVF #2: May 2006, β1=<1.0
-Myomectomy (5), salpingectomy (both), & endo removed via lap on 6.6.6
-LIT#1 in Nogales: Jun 2006
-LIT#2: Jul 2006
-FET #1: Sep 2006, β1=2.48, β2=<2.0
-Dr. Hungarian Dx Oct 2006
-Dr. Hungarian Tx Dec 2006-Mar 2007
-IVF#3: Mar 2007 Canceled myself right before retrieval
-IVF#3 Take 2: Apr/May 2007 Canceled due to dominant follicle
-IVF#3 Take 3: Aug 2007, β1<2.0
-IVF#4: Mar 2009 - Canceled due to my flipping out over donor sperm
- Hysteroscopy - Jul 2009 -IVF#4 Take 2: Jul 2009 - Canceled due to fibroid found during hysteroscopy - Myomectomy: Jul 2009
-IVF#4 Take 3: Aug 2009 - Canceled due to ovarian cyst
-IVF #4 Take 4: Oct 2009 - Antagon Cycle β1<1.0
- HSG, Cyst Aspiration on Left Ovary, Sclerotherapy on Endometrioma on Right Ovary: 29 Oct 09
-IVF #5: Nov-Dec 2009 - Adding in HGH one way or another

Pre-ET
Feng Shui'd the House
500mg Zithromax starting with stims
4 LIT Treatments
17 Weeks of Humira or Enbrel
30g IVIg CD5 of IVF cycle (day 2 or 3 of stims)
30g IVIg 2 days before transfer
1mg Dexamethazone starting with stims
40mg Lovenox, 1X's/Day, 2X's a day if BFP
0.0375mg Synthroid
Lexapro
Prenatal
Folguard 2.2Methyl folate
Extra 1g C (Stop at ET)
Extra 1g Calcium
Extra 400mg E (Stop at ET)
Nettle Tea & Capsules
2g Bromelain
Extra D3
Keep BMI<24
4-6g Fish Oil/Day
Baby Aspirin
Eating Loads of Protein!
Nettle Caplets
Femoral Massage (Stop at ET)
Acupuncture (Stop at ET)
TCM Diet: No cold or slippery foods
Immune Friendly Diet: No non-sprouted wheat, sugar, starches. Little fruit.
No nightshades
No caffeine
No coffee, not even decaf
No soy when in cycle
10 days Doxycycline

Day of Transfer
Light activity

Post ET Changes
Visualization
200mg progesterone capsules
Take it easy days 2&3
No sex til beta#1
Cut out egg yolks (contains immunogenic acid)

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